Subscribe to RSSExcerpts From The National Family Caregivers Newsletter
If you are a family caregiver you might want to consider joining the National Family Caregivers Association (NFCA). They will keep you informed of upcoming legislation, Medicare/Medicaid changes and other important matters that concern family caregivers. The following excerpts are from the NFCA January e-Newsletter.
Make This the Year You Speak Up!
With the inauguration of a new president who has expressed his commitment to substantive healthcare reform, family caregivers have an opportunity like none before: to make our voice heard as the healthcare reform debate takes shape. The Obama-Biden administration is looking for ideas and feedback as it begins the long process of reshaping America’s healthcare system. Let’s not miss out on this once-in-a-lifetime opportunity. Go to http://change.gov/agenda/health_care_agenda/ to find out how you can be a part of the discussion.
AARP Foundation Helps Families “Prepare to Care”
The AARP Foundation has a publication called “Prepare to Care: A Planning Guide for Families” that provides helpful advice on everything from creating a caregiving plan to finding and obtaining basic resources. Whether you have just begun caregiving or you have been a family caregiver for years, you will find the publication’s many checklists straightforward and useful. To download your copy of “Prepare to Care,” go to www.aarp.org/foundation/preparetocare.
Worldwide Parkinson’s Disease Trial Seeks Participants
Worldwide, a team of researchers is evaluating an investigational medicine for the changes in thought, behavior, and judgment that can occur with Parkinson’s disease. About 280 people will participate in this study at approximately 65 research centers around the world. Participants will be asked to make seven visits to the study center. It is possible that at the end of the initial treatment period, participants may have the opportunity to receive extended treatment with the active investigational drug. The clinical study is now enrolling qualified participants. To learn more, please visit www.ParkinsonsBodyMind.com or call 866/565-0262 today.
Global Multiple Sclerosis Trial: Volunteers Needed
While great progress has been made toward developing treatments for people living with MS, a need still exists for more effective treatments that may slow the progression of the disease. Researchers currently are seeking adults who are living with relapsing-remitting multiple sclerosis (RRMS) to participate in two global clinical research studies: CARE-MSSM I for adults 18-50 who have not yet begun therapy for MS other than corticosteroid treatment, and CARE-MSSM II for adults 18-55 who have experienced relapses (flare-ups) on an approved therapy to treat MS. The CARE-MS studies are designed to determine the safety and effectiveness of alemtuzumab, the investigational drug, as compared to Rebif® (interferon beta-1a), a current FDA-approved treatment. All study-required medications and procedures are provided at no cost. To learn more, call 866/790-MS-CARE (U.S. only) or visit www.CARE-MS.com.
Caregivers Wanted for Online Support Program for Stroke Families
Kent State University is conducting an NIH-funded research program designed to help female caregivers and male stroke survivors who face difficult challenges following a stroke. In this program, family caregivers will get online access to critical support, information, and education that will help to facilitate the stroke survivor’s physical and emotional recovery and reduce the family caregiver’s feelings of strain or burden. The program is especially targeted to caregivers and stroke survivors who feel depressed or anxious. All couples who participate will receive cash incentives up to $140. Couples must have their own computer and Internet service provider if they reside outside of Ohio. For more information, call 866/300-6657.
CCAN Volunteers Initiate Family Caregiver Postage Stamp Campaign
NFCA’s CCAN state volunteers want to see the United States honor our approximately 52 million family caregivers with a U.S. Family Caregiver Postage Stamp. To that end, Virginia CCAN Representative Terry Vasquez, who is spearheading the initiative, and other CCAN volunteers are collecting thousands of signatures to send directly to the Citizen Stamp Advisory Committee of the U.S. Postal Service. And they need your help.
Visit NFCA’s Web site at www.thefamilycaregiver.org and click on the U.S. Postage Stamp button on our home page to submit a letter to the Citizen Stamp Advisory Committee. On behalf of all family caregivers, we thank you in advance for your support of this effort.
Sorry, comments for this entry are closed at this time.