The Sad Side of Caregiving for Family Members with Dementia
If you are a family caregiver, you know the difficulties of taking care of an aging person with any form dementia. They forget so many things that you remember and may feel are important. Eventually, they may forget your name and who you are.
If you’ve been reading this blog, you know that I take care of my god-sister. She is a widow with no children, siblings or close family members – except me and my family. During the the first ten years of my life, I was primarily raised by my god-mother. Even though Gladys is old enough to be my mother, she and I were raised as sisters.
The Gladys that I grew up with was a strong, confident, self-sufficient woman. Today, she is just a shell of her former self – she is the exact antithesis of what she used to be. Granted, she has flash backs and threatens to knock the sh## out of one of the other clients at the adult day care center; but that’s rare. Her body is weak, she is totally reliant on me and Fred (my husband) and her memory fades more each day.
Gladys knows who I am but she doesn’t know my name. She often confuses me with my oldest daughter, Nichole and as a result she calls me Nichole. My husband, Fred and daughter, Anita don’t have names. Gladys manages to call them without using a name.
It’s very difficult for me to come to grips with this Gladys because I still see the strong, confident woman I knew in the past. Yet, I realize that the past is exactly that – the past.
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2 People have left comments on this post
May 7, 2009 - 02:05:03I feel very sympathetic towards both you and Gladys and the rest of your family. A book I am reading now, *The Longevity Revolution,* by Dr. Robert Butler, is filled with warnings about the future of old age in this country.
An old friend of ours just had a stroke. He is divorced and has no children. Basically, we and our circle are his support system, and yet we, too, face advancing age and we have our grandkids to think about as well.
One thing that strikes me is his comment that we really don’t (as a culture) like old people. We admire youth. We want to think of ourselves as young. This is the reason, he feels, there is so little attention paid to the needs of old people and also why there is so little research on dementia, Alzheimers, and other age associated disorders.
I mean Dr. Butler, of course, in the last paragraph.
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